My book project nvestigates the ethical and social dimensions surrounding the use of emerging genetic technologies to treat sickle cell disease and interrogates the meaning of cure for members of the sickle cell disease community.

We conducted a scoping review of the peer-reviewed literature on bone marrow and stem cell transplantation and gene therapy for SCD and beta thalassemia that reported clinical outcomes, psychosocial outcomes, or perspectives of various stakeholders to understand how curative language is used to describe the outcomes of these interventions for inherited hemoglobinopathies.

We examine medical examiner reports from the National Violent Death Reporting System from 2013 to 2019 for over 26,000 Black and white suicide decedents ages 10–29. We apply structural topic modeling approaches to describe the broad contours of young adult suicide in the United States today.

This study examines adults living with sickle cell disease in the United States enrolled to investigate what aspects of the sickle cell disease lived experience, understood here as pain and illness perception, are associated with reporting subsidiary and primary altruistic motivations for participating in clinical research.